Comments on: A Worthwhile Cause

by: t13ni

Sun, 15 Jun 2008 19:48:37 +0000

Thanks for this. My dad died of ALS 8 years ago. Everyone–lobby your politicians, scream from the rooftops. A woman who's mother was diagnosed created an adventure challenge race for ALS and has raised $560,000 in 5 years. We can do it! We need to demand action.

by: Catie

Sat, 14 Jun 2008 17:09:25 +0000

Thank you for posting this cause. I lost my mother to the disease 5 years ago after she battled with it for 10 years. It's unbelievable how terrible it is. Now my Aunt has it also.

by: ckfig

Sat, 14 Jun 2008 05:37:29 +0000

ALS is a horrible disease. It robs people of their body, while leaving their mind intact to understand what is happening. I've had two loved ones die of this horrendous disease.

Whether you like Perez or not, please respect the fact that this is a good thing that he is doing by promoting this.

by: LO

Sat, 14 Jun 2008 03:25:06 +0000

THIS DISEASE NEEDS AS MUCH PROMOTION AS IT CAN… please, as much as I talk to my friends, scream, and shout about this disease, its not enough, no one hears me.

There is no national registry for this disease, this means that there is no way for the government to see where ALS patients are located, or if there is an environment problem which could ultimately be causing this disease. Also, it means that patients who may suffer from this disease are alone, with no national database of people who are suffering to.

Perez. This disease needs your help.

by: laure

Sat, 14 Jun 2008 03:19:10 +0000

Perez… I officially love you. I read your website everyday, and everytime I see a daily inspiration, I pray that the next one, or the one after that, will be about ALS. My dad has ALS, and it has been horrible to watch this disease take away EVERYTHING (including his independence) that he has worked so hard to achieve. Hes only 48. Whats even worse about this horrible, fatal disease is that it is so relatively unknown. It paralyzes you, traps your fully functioning brain in a body where you can, ultimately, move nothing but your eyes.

WE MUST SPREAD THE WORD IN ORDER TO FIND A CURE.

by: :(

Sat, 14 Jun 2008 02:25:53 +0000

Perez, just reading this has got me crying. My uncle died from ALS at age 50. You don't know how hard it was to see him from one year being fine, and the next almost a vegetable. Thank you, Perez

by: Sara

Fri, 13 Jun 2008 23:02:09 +0000

Perez, thank you SO much for putting this up here! ALS doesn't get the press of other diseases and research funding is severly lacking. Thank you for putting this out there for millions of people to see.

by: Perse

Fri, 13 Jun 2008 19:01:53 +0000

Something like this makes me really happy.
I lost my father last august in consequence of ALS and we battle against this terrible disease during 3 years….

I hope iniciatives like this could pop out in Brazil (where I'm from)…

Congrats, Perez, on bringing people stuff like this!

by: Heath

Fri, 13 Jun 2008 18:59:20 +0000

Thanks Perez for posting this! My dad was diagnosed at 23 and has been living with the disease for 24 years. It is good to know that there are some people out there that recognize ALS and the need to donate money for research to find a cure. It may be to late for my dad, but maybe one day there may be a cure for other ALS patients.

by: jenny

Fri, 13 Jun 2008 18:22:08 +0000

thank you for putting this up. millions of people visit your site every day, and maybe if more people knew about the disease, there could be more research and a better fight against it. my mom's 49 and a slow progressor, but it gets harder every day. it's a horrible, heartbreaking, inexplicable disease, and more funding is desperately needed to figure this nightmare out.

thanks again for posting.